This week, we lost the presence of another warrior child. Samuel had Leigh's Syndrome, a mitochondrial disease. The amazing family Samuel was born into faced a situation that was not unlike ours. Our experiences were not exactly the same, but they were in the same neighborhood.
Speaking of neighborhoods, this week many may be seeing green porch lights on in recognition of Mitochondrial Awareness Week. It is a way to shine some light on the struggle this disease brings to families all over the globe.
Another connection we have with this family is our Lord and Savior. We see in them the power and grace of Christ that supports when our strength is gone. We see in them a faithfulness to glorify Him through their family. We have been blessed by their blog and I am sure you will too. We are thankful they share their life with others. We are thankful they share Samuel with others. Neither he nor Macayla lived in vain. They had purpose and the ripples from their lives will be felt for eternity.
Samuel's "heavenly body"
We miss these precious ones so much. When we were in their shoes over two years ago, memories hurt. Now, they often bring joy and smiles, but not all the time. It is unpredictable as to which memory will stir grief and which will stir joy.
Seeing another family go through this makes us ache, but we ache with hope. We grieve, but we grieve with hope. We remember with hope and know that we will see Samuel, Macayla, and many other precious ones again. This hope is based on the faith we have in Jesus Christ. It is not wishful thinking of fantasy, but a knowledge and assurance. We miss them, but the day will come when we will see their faces again because of the grace of Christ.
In the meantime, I hope people see the light of Christ through the lives of these kids. Like the porch lights that will be on this week, His light shows others the way Home.